Hello everyone. My name is Maria Jose and I am eight (8) months old! I’m reaching out because I desperately need your help.
I was born with a severe physical disorder called Cloacal Exstrophy. This means that my abdominal organs, including my bladder and intestines, are exposed. My Mommy told me that it is very severe and extremely rare, which explains the pain and discomfort I experience every day. I still try to smile for my Mommy and I think she understands why I feel blue some days. They try to be brave, but I know my Mommy and Daddy worry about me a lot!
I think it’s best that I keep my goals simple, like learning how to share my love, laughter and smiles with my Mommy & Daddy, but I do have one special goal and that is to make it to my first birthday! Then, perhaps I will be old enough to blow out my own candle? Well, perhaps Mommy might have to help me, but then I fully intend to dive into the cake head-first followed by both fists. I want it to be spongy with frosting and loads of yummy fruit and sprinkles! Don’t tell my Mommy, but my motto at this age is, the messier the better.
Sorry, I digress … like I said, my condition is very severe and there is only one very special Doctor who can perform the surgery necessary to try and save my life. His name is Dr. John P. Gearhart from John Hopkins Hospital in Baltimore. Through the grapevine, I have been told by many Doctors that he is the best in the field and he can help me. I can’t wait to meet him!! However, there are a couple of problems which prevent me from meeting this really “cool” doctor.
The first is that I live in Colombia and I need to fly to a place called the United States to get my surgery. The second is that it is very expensive for Dr. John to perform the complex surgery that could make me better. It makes my Mommy and Daddy so sad that they don’t have the “economic means” (aka magic beans in my terminology) to cover the costs related to the travel and treatment and yet they have been told that if I don’t see Dr. John soon, I would need a miracle to survive.
At this very magical age, I want to believe in miracles. I want to believe that there are people out there who can help me.
I don’t know where to start to find help. If you know of anyone who can help me or if there are any international foundations that can help my Mommy and Daddy bring me to this fairytale place called the United States of America to have my surgery, I would be very grateful.
If you can spare any magic beans, any at all, please send them to my Give Forward Fund Raising account and I promise that you will be remembered with so much love when I blow out my birthday candle! If you can’t spare any I quite understand (because as my Mommy keeps telling me, they don’t grow on trees), but you can still help me by responding to my post and clicking “like” to help spread the word!
Okay – it’s time for me to go to bed, after all, I am only 8 months old and I need a lot of sleep. Thank you for reading my post.
Love and Hugs,
Baby Maria Jose
ps. Here is how you can contact my mommy if you know how to help me:
Maria Fernanda Chaves Wong Swie San